Harry Bhogal
Meet Michigan Lupus Foundation Board President Harry Bhogal from Ann Arbor, MI. Harry has been diagnosed with lupus for over 10 years.
Harry’s Story:
I first started experiencing symptoms of lupus around one month into college at the age of 18. In the short-term, I went from being able to play basketball, to being unable to walk properly, lift simple objects like my phone, or even turn a doorknob due to the inflammation and amount of excruciating pain I was suddenly in. I felt this pain and inflammation around various joints and muscles throughout my entire body. It took around an entire year, including visits to multiple rheumatologists to get an official lupus diagnosis. Unfortunately, I had doctors who didn’t believe me and flat out ignored glaring symptoms and unusual lab test results. Additionally, due to the uncontrolled symptoms, I had to medically withdraw from school. This was devastating for me because it felt like a set back and I felt extremely helpless. Fortunately, I have an amazing support system in my family and close friends and we kept on persevering.
I finally found a doctor who cared and once I received an official lupus diagnosis, I was able to get treatment to manage the symptoms. Once I was able to walk consistently and make modifications to return back to my normal activities, I not only re-applied to a different university, but I received a tuition full-ride to pursue a BBA in Computer Information Systems! During my academic journey, I learned a lot about being a strong advocate for myself to ensure I had access to resources & accommodations that I needed to succeed. Throughout the years, I’ve had to visit multiple types of specialists due to complications caused by lupus. Having lupus often means you have multiple other diseases as well, so I’ve had to learn how to prioritize my health while taking things at my own pace to achieve my personal and professional goals. While I am privileged to be in a position as a working professional, these regular doctors visits allow me to prioritize my health and take proactive measures to deal with what lupus throws at me. Lupus is incredibly difficult to deal with, as flare-ups and complications often result in horrible pain and discomfort. This means prioritizing rest and recovery at unexpected times, along with getting enhanced treatment. Throughout this battle as a lupus warrior, I’ve learned to be patient with myself and give myself grace. I may not be the same person that I was prior to getting lupus, but acknowledging my limitations and focusing on what I can control has done wonders for me. Surrounding myself with an incredible support system has helped me tremendously as well, and I’m truly grateful for the life that I get to live.
What is one piece of advice you would give to someone who is newly diagnosed?: Never stop advocating for yourself! Lupus is a complex disease, and most people won’t understand what you’re going through. Find that doctor who cares. Focus on family and friends who are empathetic and will support you. Most importantly, be patient and kind to yourself.
What is one misconception that you wish you could change about lupus?: I wish people that knew that lupus can look like an invisible illness. Just because you “look” fine to someone else does not mean that you’re okay!
What brings you joy?: Spending quality time with my family and friends! Whether it’s going out for dinner, playing sports or watching movies, this is what brings me the most joy :)
Click here to donate to Harry’s Lupus Awareness Month fundraiser in support the foundation’s mission.