Clinical Trial & Research Opportunities
Clinical trials are research studies that test new medical, surgical or behavioral interventions in people to determine if they are safe and effective. They are a key part of clinical research and are considered the safest and fastest way to find new and improved treatment options. Clinical trials and research studies are essential for understanding lupus and the development of new therapies. Whether to participate in a clinical trial is a personal decision that should be made willingly and without pressure. You should only participate if you feel comfortable and informed about the process.
Below is a list of current clinical trial and research opportunities (surveys, focus groups, interviews) and additional resources in the state of Michigan and beyond. Participants are often compensated.
Cutaneous Lupus Study in Ann Arbor, MI
Most people with lupus experience skin involvement. When lupus affects the skin, it is called cutaneous lupus erythematosus (CLE). If you have CLE and are not responding or are intolerant to antimalarial medication, you may be eligible for a research study. Fivenson Dermatology in Ann Arbor, MI is recruiting lupus patients with cutaneous involvement to participate in a clinical trial. The injectable drug is entering phase III of the trial with promising results. Participants will be compensated.
For more information, contact the study coordinator, Laura Fader, at 734-222-9630 or email lfader@fivensondermatology.com
Indiana University Research Study
Systemic Lupus Erythematosus Self-Management Strategies, Facilitators and Barriers
Scientists do research to answer important questions that might help change or improve the way we do things in the future. You are being asked to participate in a research study to understand how patients with systemic lupus erythematosus manage their disease daily. The study is being conducted by Danielle Short and Dr. Wendy Miller through the School of Nursing Department of Indiana University at Indianapolis.
The study requires completing a Qualtrics Survey to confirm you are eligible to participate; a Zoom meeting application; collecting demographic data; a second meeting where interview questions will be asked; interview questions will be open-ended, allowing you to share your thoughts and experiences; the interview will last approximately 1 hour and will be scheduled at your convenience. If you feel uncomfortable having Zoom's video feature turned on during the interview, you may turn it off and just be audio recorded. This research is intended for women 18 years of age or older and for residents of the United States.
You will be provided a $10.00 gift card for completing the interview. To complete the survey, click here. If you have questions before participating, contact Danielle Short at Shortdn@IU.edu.
University of Michigan Health Research
The University of Michigan has ongoing research opportunities for those with lupus. Click here to learn more.
Decision-making changes and thoughts about exercise after diagnosis of lupus and heart disease: this study will assist in informing interventions that facilitate exercise engagement in populations at increased risk for heart disease, such as lupus. Click here to learn more.
Researchers in the Chronic Pain & Fatigue Research Center as well as the Michigan Psychedelic Center at the University of Michigan are interested in improving pain management and quality of life for lupus warriors. To do this, they need to learn more about how you manage your pain as well as your attitudes toward novel therapies. Please consider completing this brief (less than 5 minutes) survey to help them learn more about your experiences.
Additional Resources: Lupus and Allied Diseases Association, Inc.
The Lupus and Allied Diseases Association, Inc. (LADA) is an all-volunteer national patient advocacy organization dedicated to enhancing quality of life by enlightening and empowering individuals impacted by lupus and allied diseases and other conditions of unmet need to become proactive in their medical care.
LADA has compiled a thorough list of clinical trial participation resources. View the list here.