Living with Lupus one day at a time

I was diagnosed a little over 8 yrs now, unlike most, I have DLE, and am unable to take the usual medications. I can’t do the simple things like taking my daughter to the park, because of the issues with the sun and heat. Most people don’t understand and of course she doesn’t. I have a very hard time getting to the Dr to even be monitored because there are so few in my area. I also have a few other health issues, like most with lupus, fibromyalgia, depression, raynauds, tooth decay, and probably others I’m not aware of. I know there are plenty of people who have it worse, so I try not to dwell on my illnesses, even though they keep me from enjoying life with my family and friends. The one thing that helps me cope, singing. I love to sing. When I am singing karaoke it’s like I am the healthy person I used to be. They think lupus is brought out by a trauma or severe stress or something. I really wish we could raise more awareness and funds for more information and treatments, or to just wake up tomorrow, pain free and lupus free. Wishful thinking I know.


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